{"id":18363,"date":"2018-04-23T13:28:39","date_gmt":"2018-04-23T17:28:39","guid":{"rendered":"https:\/\/whatsgood.vitaminshoppe.com\/?p=18363"},"modified":"2018-04-23T13:28:39","modified_gmt":"2018-04-23T17:28:39","slug":"food-diary-lupus-fybromyalgia","status":"publish","type":"post","link":"https:\/\/www.vitaminshoppe.com\/blog\/food-diary-lupus-fybromyalgia\/","title":{"rendered":"How Keeping A Food Diary Helps Me Manage Life With Lupus and Fibromyalgia"},"content":{"rendered":"<p>When you keep a food diary, you log everything\u2014and I mean <em>everything<\/em>\u2014down to the half-and-half in your coffee and the raisins in your oatmeal. It\u2019s an effort.<\/p>\n<p>Keeping a food diary is new to me. When I see my nutritionist next week, she\u2019ll analyze it and tell me if I\u2019m filling in the nutritional gaps in my diet. But I\u2019m not keeping the diary to count calories, exactly\u2014I\u2019m doing it because this is what it takes to live with lupus and<a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2017\/07\/20\/fibromyalgia-fitness-healthy\/\"> fibromyalgia<\/a>. This is just the latest addition to my health management toolbox, which also includes supplements and exercise.<\/p>\n<p>Systemic <a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2017\/12\/06\/autoimmune-diseases\/\">lupus<\/a> erythematosus, usually just called lupus, is an autoimmune disease that affects the kidneys, blood cells, brain, heart, and lungs. Essentially, a healthy immune system creates special cells, called antibodies, that attack foreign objects like bacteria or viruses. With an autoimmune disease, the immune system creates antibodies to the body\u2019s own healthy tissues. My body is at war with itself on a cellular level.<\/p>\n<!-- Shortcode [rr-products] does not match the conditions -->\n<p>As if that weren\u2019t enough, I also suffer from fibromyalgia<em>,<\/em> a disorder characterized by widespread musculoskeletal pain on top of fatigue, sleep, memory and mood issues.<\/p>\n<p>Between the two diseases, I live with chronic pain, joint stiffness, fatigue, brain fog, rashes, and fevers. Sometimes, due to the lupus, the lining around my lungs becomes inflamed and it hurts to breathe deeply. It feels like having the flu, minus the sneezing and the understanding that it will be gone whenever the flare-up is over.<\/p>\n<p>There is no cure for lupus or fibromyalgia. In fact, the FDA has approved only one lupus-specific treatment in the last 50 years, and it didn\u2019t work for me.<\/p>\n<p>Like most people with autoimmune diseases, I\u2019ve had symptoms most of my life\u2014things like strange infections that didn\u2019t go away with treatment, unexplained inflammation, and even an allergy to sunlight. When I had digestive problems, I saw a gastroenterologist. When I had allergy problems, I saw an allergist. When I had gynecological problems, I saw a gynecologist. It wasn\u2019t until 2011, when I was 41, that I received a diagnosis of lupus. By that point, I\u2019d gotten so sick I couldn\u2019t teach, drive, or\u2014eventually\u2014stand on my own.<\/p>\n<p>Medication only goes so far in treating <a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2017\/12\/14\/staying-fit-autoimmune-disorder\/\">autoimmune diseases<\/a>, even when you find the right one. It\u2019s only <em>one<\/em> tool. Somewhere in my head lives an irrational girl who wishes for a magic pill to fix me. Rationally, I know it doesn\u2019t exist. Instead, I have to manage the symptoms that stay with me if I want any quality of life.<\/p>\n<p>That\u2019s where my health management toolbox enters into the picture.<\/p>\n<p>With lupus, my overactive immune system has made proper eating hard. My stomach doesn\u2019t empty normally. My intestines don\u2019t absorb nutrients or push food along well. Too much\u00a0<a href=\"https:\/\/www.vitaminshoppe.com\/search?search=fiber\">fiber<\/a> or fat and my digestive system goes on strike, leaving me unable to eat. Food allergies only further complicate the issue.<\/p>\n<p>For this reason, keeping a food diary is so key. My nutritionist deals with my specific situation; she is aware of my health history, symptoms, medications, risks, preferences, and goals. They help me add calories and nutrients to my diet, and I also take a <a href=\"https:\/\/www.vitaminshoppe.com\/search?search=multi%20vitamin%20for%20women\">multivitamin<\/a> to fill in some of the gaps. And, like many people with lupus, I am <a href=\"https:\/\/www.vitaminshoppe.com\/c\/vitamin-d\/N-cp99i2?search1=vitamin%20d\">vitamin D<\/a>\u00a0deficient, so I take a high weekly dose of vitamin D.<\/p>\n<p>Like diet and supplementation, exercise and movement is also an important tool in my wellness box. Actually, it\u2019s as much a part of my morning as opening my eyes.<\/p>\n<p>Movement is the only way to break through the immobilizing morning pain and stiffness of both lupus and fibromyalgia. Many mornings, my first thought is, <em>I can\u2019t move<\/em>. It feels like someone has tied knots around all my<a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2018\/04\/19\/supplements-for-achy-joints\/\"> joints<\/a> and then pulled the string until everything is locked in place.<\/p>\n<p><strong>Related:\u00a0<a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2017\/07\/20\/fibromyalgia-fitness-healthy\/\">Despite My Fibromyalgia, I\u2019m Focused On Staying Healthy<\/a><\/strong><\/p>\n<p>When I was diagnosed with fibromyalgia, my doctor\u2014through my tears\u2014suggested that I try tai chi to help with pain management. In fact, the<em> New England Journal of Medicine<\/em> published <a href=\"http:\/\/www.nejm.org\/doi\/full\/10.1056\/NEJMoa0912611\">an article<\/a> about a study in which people with fibromyalgia experienced less pain if they did tai chi, a \u201clow and slow\u201d martial art.<\/p>\n<p>So I tried the tai chi out of desperation. After a few days, my pain decreased a little. After a couple weeks, I could push through my morning pain and not wince with every step. When I didn\u2019t do it, every move hurt. Things like getting downstairs to make my morning coffee once again became agony and the tai chi helped that pain recede.<\/p>\n<p>On hard days, every little bit of effort counts as progress. I take a few bites of <a href=\"https:\/\/www.vitaminshoppe.com\/search?search=oatmeal\">oatmeal<\/a> and wash my morning medications down with water.<\/p>\n<p>The burden of keeping a food diary and tracking my exercise and all the little things I do each day to keep functioning is infinitely lighter than the burden of watching my life slip by without fighting for it. Only a few years ago, just getting through the day was a chore. If I could shower and get dressed without having to immediately go back to bed, it was a victory.<\/p>\n<p>To make the process better, I use a pretty planner and colored pens to track my wellness progression. It\u2019s how I manage a disease that wants to manage me.<\/p>\n<p>When I practice these acts of self-care\u2014like when I eat well, take<a href=\"https:\/\/www.vitaminshoppe.com\/search?search=supplements\"> supplements,<\/a> and move through my tai chi practice\u2014my pain ebbs away. In fact, I\u2019m not just losing pain: I\u2019m finding myself.<\/p>\n<p>Tai chi and <a href=\"https:\/\/www.vitaminshoppe.com\/blog\/2017\/09\/06\/does-yoga-count-as-a-workout\/\">yoga<\/a> both demand attention to breath, a basic and necessary action for life. With each breath, I remember: I am more than pain. I imagine that I can feel my chi\u2014my energy\u2014pulsing through my body. With every food journal entry and everything I do to take care of myself, my thoughts become clearer, and I can truly focus on things that matter outside of myself.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>When you keep a food diary, you log everything\u2014and I mean everything\u2014down to the half-and-half in your coffee and the raisins in your oatmeal. It\u2019s an effort. Keeping a food diary is new to me. When I see my nutritionist next week, she\u2019ll analyze it and tell me if I\u2019m filling in the nutritional gaps<a class=\"more-link\" href=\"https:\/\/www.vitaminshoppe.com\/blog\/food-diary-lupus-fybromyalgia\/\">Read More <span class=\"screen-reader-text\">How Keeping A Food Diary Helps Me Manage Life With Lupus and Fibromyalgia<\/span><\/a><\/p>\n","protected":false},"author":181,"featured_media":18368,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[5,8,9],"tags":[1226,1225,431,939,231,434],"class_list":["post-18363","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","category-stories","category-the-latest","tag-disease-management","tag-fibro","tag-fibromyalgia","tag-lupus","tag-supplements","tag-wellness"],"jetpack_publicize_connections":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>How Keeping A Food Diary Helps Me Manage Life With Lupus and Fibromyalgia | What\u2019s Good blog<\/title>\n<meta name=\"description\" content=\"When you keep a food diary, you log everything\u2014and I mean everything\u2014down to the half-and-half in your coffee and the raisins in your oatmeal. It\u2019s an ...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.vitaminshoppe.com\/blog\/food-diary-lupus-fybromyalgia\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"How Keeping A Food Diary Helps Me Manage Life With Lupus and Fibromyalgia | What\u2019s Good blog\" \/>\n<meta property=\"og:description\" content=\"When you keep a food diary, you log everything\u2014and I mean everything\u2014down to the half-and-half in your coffee and the raisins in your oatmeal. 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